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Cancer in the day of Covid


San Francisco, one of the most liberal cities on earth, just lifted the indoor mask mandate. For those of us who are immuno-compromised this means that much more fear, that much more isolation as there are fewer and fewer places of 'safety'. I read an article in the Times or NPR the other day about this and it rung so true.


When we arrived in SF a month ago we rejoiced that the majority of people outside were wearing masks, but in this short amount of time it has radically changed. The girls don N95's and I have a Micron HME valve for my stoma (equivalent of an N95) and a KN95 for my face (not really passing air through my nose and mouth but just in case), for our daily walks. We get all our groceries via delivery - Amazon, Safeway, Trader Joes (private courier #kennysconcierge). On occasion when you just need that one more thing the girls brave the corner market with an added face shield - dodging people invading social distancing space, lest they bring back The VID.


We see the photos on instagram of everyone resuming normal life. Ballgames, Zoo's, Restaurants, Parties...it still seems like a land far away. We are in a bubble like so many other immuno-compromised people who are still dodging the dreaded VID. Should they be lifting the indoor mask mandate? I mean Covid is still here, so why do it? Is it really that hard to slip on a mask before you go into the market? Can't we err on the side of caution for the greater good?


Which brings me to the hospitals. They on the other hand are hanging on tight to the covid protocol when it comes to visitors. So if my 1 visitor is already in the hospital from 8am to 6pm how exactly does them staying overnight increase the likelihood of Covid spreading? I call BULLSHIT. The staff seems in glee to kick all the visitors out so they don't have to deal with advocates for the patients. So they go unchecked, no questions asked. When you are a patient you are vulnerable at best. Even if you are conscious and educated you are a poor self advocate. It's inexcusable at this point that the hospitals do not allow at least one vaccinated visitor at a time 24/7 with a patient. It brings them reassurance, comfort, extra help, and LOVE to help them heal.


*photo above: getting my fourth booster this week

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4 comentarios


17ajrincon
09 may 2022

family is the BEST healer especially for those who are continuously in the hospital. we are human beings who need comfort, care, and advocacy and although nurses are taught to serve as a patient advocate the true best is always a loved one who KNOWS the patient.

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Siena Fuentevilla
Siena Fuentevilla
04 mar 2022

I agree. It is so hard in a society that does not see the immunocompromised. We will just avoid everyone as best we can for now!

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kellyclif
kellyclif
27 feb 2022

Well said Tia. They should allow an overnight visitor for patients. you put it so clearly. It can be terrifying being alone in these spaces. Having someone there to advocate for you not only reduces the stress of it all it can also be lifesaving. We need more patients voices like this to change hospital policy. If hospitals are this scared of the transmission maybe they should (instead of kicking out the same visitor who has been there all day) speak with their employee providers and care givers about how behavior outside of the hospital can expose them to the VID and how they can bring it back to their vulnerable patients. You are a badass! Also the girls a…

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draatf
27 feb 2022

I couldn't agree more Sonya on both masking and hospital visitors!! Why can't we all wear our masks to protect the immunocompromised a little longer? Really, what is the big deal with donning a mask to help others? Second, my concern about healthcare providers and facilities since COVID began was that we would all accept that it is OK to make families leave sick patients all alone without their loved ones to advocate for them. We need to start to mobilize as a society to force hospitals to allow patients a loved one at the bedside 24/7! I'm with you on both points!

LOVE

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