non-verbal, non-speaking, dysphasia-aphasia-dysphagia; augmentative alternative communication (AAC),
speech generating device, text-to-talk, AI synthesized voice; disabled, handicapped, impaired; HAVE cancer, HAD cancer, cancer free,...
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glossectomygirl
- Apr 21
- 2 min
Costa Rica
There was this moment. It seemed like immunizations were the answer. We were feeling almost normal again, starting to venture to...
67 views0 comments
glossectomygirl
- Mar 9
- 1 min
Lymphatic (massage) Touch demonstration
just a quick disclaimer that i AM NOT A TRAINED PROFESSIONAL. this routine was designed for me by a SLP who is a specialist in Lymphatic...
276 views0 comments
glossectomygirl
- Jan 5
- 2 min
Liquid Diet on the Go
*only read if you are interested in liquid diets, otherwise you will be bored to tears...okay, you might be anyway but at least you were...
151 views0 comments
glossectomygirl
- Dec 24, 2022
- 3 min
It's a Wonderful Life...
It was a year of loss. we lost my dad, my tongue, my larynx, the girls lost some of their youth, my mom lost more of herself...
413 views3 comments
glossectomygirl
- Nov 8, 2022
- 3 min
The day my tongue exploded.
I heard a piece on NPR about a woman Hannah Palin, whose mom had a massive stroke. After months of hospitalization the mom emerged a...
201 views2 comments
glossectomygirl
- Oct 16, 2022
- 5 min
Speaking of...
So why can't i speak and how do i communicate? This is an excellent question. Like most people, i didn't pay much attention to the...
687 views4 comments
glossectomygirl
- Aug 24, 2022
- 3 min
Me and the Phone
The rotary phone sat in our apartment kitchen on a low bookshelf. I would stand there with the yellow pages to the side of it, anxiety...
188 views3 comments
glossectomygirl
- Aug 1, 2022
- 2 min
I Am The Walrus
Yesterday I met someone new. I had given them a heads up that i spoke via type to text. As soon as he greeted me he spoke a little...
273 views4 comments
glossectomygirl
- Jul 7, 2022
- 2 min
GIFT of slow.
Cancer is diabolical, sinister, evil. Yet... I find myself thinking about the gifts it has given me. It's twisted, i know. I mean it has...
78 views1 comment
glossectomygirl
- May 30, 2022
- 3 min
5 months : 1 month : 2 days
now august (reference: my before) WHOOP! I'm 5 months post surgery, 1 month post radiation, and 2 days from moving home! After surgery my...
151 views4 comments
glossectomygirl
- May 18, 2022
- 2 min
Going Home
This phase of our journey is coming to a close. We have been in San Francisco for 5 months, it went fast and slow. We built a little life...
122 views4 comments
glossectomygirl
- May 4, 2022
- 2 min
The Stockdale Paradox
https://medicine.yale.edu/media-player/ed-yong-normal-led-to-this-on-two-years-of-covering-the-pandemic/?tab=info&mibextid=ATveJy A...
78 views2 comments
glossectomygirl
- Apr 28, 2022
- 1 min
Push it
TWO MORE DAYS OF RADIATION!!!!!!!!!!!!!! Compared to many people i think i have weathered the 13 hours surgery and 33 radiation...
83 views6 comments
glossectomygirl
- Apr 21, 2022
- 2 min
Glossy goes to Group
When Miguel and I left Berkeley, we joked that we were kicked out because we didn't drink coffee or wine and we didn't go to 'group'....
110 views6 comments
glossectomygirl
- Apr 10, 2022
- 4 min
My new voice box(es)!
a review of small portable bluetooth speakers Bluetooth speakers are my new voice box! Currently I have settled into using my phone with...
193 views5 comments
glossectomygirl
- Apr 1, 2022
- 3 min
Anti Cancer (an old way of life)
Some of my early memories are of the smells of the health food store, coming home delighted to have 'candy' - honey and sesame seed...
138 views6 comments
glossectomygirl
- Mar 27, 2022
- 1 min
Family, Friends, Family, Friends....
This is a quick post to again say how very very important all the support from our family and friends has been. I think that before I was...
85 views7 comments
glossectomygirl
- Mar 21, 2022
- 3 min
ENJOY YOUR DAMN TONGUE!
I am closing in on 2 months without a tongue. Not having a tongue REALLY makes you appreciate what you took for granted. I have touched...
120 views3 comments
glossectomygirl
- Mar 12, 2022
- 1 min
Now and Then and In-between
This afternoon 3-12-22 vs August 2022 (ahhh...to have a neck...) Side view of war wounds 3-12-22. The swelling at this point is mainly...
328 views11 comments
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