Glossy goes to Denver - NRG oncology 2024
I am incredibly honored to have taken part in the NRG oncology 2024 summer meeting. The head and neck oncologists here are not only...
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glossectomygirl
- Apr 20
- 4 min
Travel tips + tricks
Traveling as a lary/glossy definitely is a different experience. I am a travel light kinda gal and it has increased the load, but I've...
101 views0 comments
glossectomygirl
- Apr 1
- 7 min
Glossy Girl - a creation story -
Today is April 1 and we are kicking off Head and Neck Cancer Awareness Month. So i thought it fitting to share my 'creation story' with...
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glossectomygirl
- Mar 20
- 3 min
The Plan
I have always focused on my life plan. I’m a list maker. At age 8 I wanted to be an architect and though this sometimes fluctuated...
61 views2 comments
glossectomygirl
- Oct 28, 2023
- 1 min
Me, the Obturator and the EL.*
I have grown accustom to not speaking. My thumbs tire of tapping. My fingers flimsy at the end of the day. Sloppy spelling betrays my...
151 views2 comments
glossectomygirl
- Aug 29, 2023
- 8 min
non-verbal, non-speaking, dysphasia-aphasia-dysphagia; augmentative alternative communication (AAC),
speech generating device, text-to-talk, AI synthesized voice; disabled, handicapped, impaired; HAVE cancer, HAD cancer, cancer free,...
264 views0 comments
glossectomygirl
- Apr 21, 2023
- 2 min
Costa Rica
There was this moment. It seemed like immunizations were the answer. We were feeling almost normal again, starting to venture to...
103 views0 comments
glossectomygirl
- Mar 9, 2023
- 1 min
Lymphatic (massage) Touch demonstration
just a quick disclaimer that i AM NOT A TRAINED PROFESSIONAL. this routine was designed for me by a SLP who is a specialist in Lymphatic...
454 views1 comment
glossectomygirl
- Jan 5, 2023
- 2 min
Liquid Diet on the Go
*only read if you are interested in liquid diets, otherwise you will be bored to tears...okay, you might be anyway but at least you were...
170 views0 comments
glossectomygirl
- Dec 24, 2022
- 3 min
It's a Wonderful Life...
It was a year of loss. we lost my dad, my tongue, my larynx, the girls lost some of their youth, my mom lost more of herself...
462 views3 comments
glossectomygirl
- Nov 8, 2022
- 3 min
The day my tongue exploded.
I heard a piece on NPR about a woman Hannah Palin, whose mom had a massive stroke. After months of hospitalization the mom emerged a...
228 views2 comments
glossectomygirl
- Oct 16, 2022
- 5 min
Speaking of...
So why can't i speak and how do i communicate? This is an excellent question. Like most people, i didn't pay much attention to the...
726 views4 comments
glossectomygirl
- Aug 24, 2022
- 3 min
Me and the Phone
The rotary phone sat in our apartment kitchen on a low bookshelf. I would stand there with the yellow pages to the side of it, anxiety...
197 views3 comments
glossectomygirl
- Aug 1, 2022
- 2 min
I Am The Walrus
Yesterday I met someone new. I had given them a heads up that i spoke via type to text. As soon as he greeted me he spoke a little...
303 views4 comments
glossectomygirl
- Jul 7, 2022
- 2 min
GIFT of slow.
Cancer is diabolical, sinister, evil. Yet... I find myself thinking about the gifts it has given me. It's twisted, i know. I mean it has...
88 views1 comment
glossectomygirl
- May 30, 2022
- 3 min
5 months : 1 month : 2 days
now august (reference: my before) WHOOP! I'm 5 months post surgery, 1 month post radiation, and 2 days from moving home! After surgery my...
169 views4 comments
glossectomygirl
- May 18, 2022
- 2 min
Going Home
This phase of our journey is coming to a close. We have been in San Francisco for 5 months, it went fast and slow. We built a little life...
136 views4 comments
glossectomygirl
- May 4, 2022
- 2 min
The Stockdale Paradox
https://medicine.yale.edu/media-player/ed-yong-normal-led-to-this-on-two-years-of-covering-the-pandemic/?tab=info&mibextid=ATveJy A...
88 views2 comments
glossectomygirl
- Apr 28, 2022
- 1 min
Push it
TWO MORE DAYS OF RADIATION!!!!!!!!!!!!!! Compared to many people i think i have weathered the 13 hours surgery and 33 radiation...
87 views6 comments
glossectomygirl
- Apr 21, 2022
- 2 min
Glossy goes to Group
When Miguel and I left Berkeley, we joked that we were kicked out because we didn't drink coffee or wine and we didn't go to 'group'....
116 views6 comments
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