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  • glossectomygirl

My First 'Word'


My new anatomy is proving to have certain hidden talents! Now that my mouth is less swollen and they took the tube out, i am working on my 'mouthing' of words a bit more. We discovered to much delight that i can purse my lips and make a puckering noise that just almost sounds like the word BURP. Great fun especially when spit comes hurling out with it - so keep clear folks. With this same technique I can almost approximate the word 'perfect' as well. No sound is really coming from my vocal cords i can just make lip noises, but maybe i could start a whole new language of raspberries and pops.

AHHH but my real new super power is I'm a Larry Tube Luggie Launcher! Give me one good cough and i might just hurl a luggie directly in your eye! Don't piss me off people!


On a more serious note...the meeting with radiation oncology today wasn't all fun and games. My tumor pathology bridges between being adenoid cystic and myoepithilial. For the first time today we heard that adenoid cystic travels well along the nervous system and the place it likes to jump too especially is the brain. WTF. So the strategy for radiation is to put up blockades along the major nerve routes out of the area. Yes please. But lord, radiation sounds horrid. Cross that bridge when we come to it.

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draatf
Feb 19, 2022

Sonya, I hope you get lots of rest and love this weekend. You are doing such a great job of taking one step at a time, one day at a time. I also admire your ability to find humor in every situation! You are reminding me how important it is to laugh at ourselves and especially at tough moments. You are healing and you are overcoming this. You have a "badass" medical team that will get you your cure and you are doing the recovery work like a champion. On a side note, one of these days, I would like to hear British Sonya and Spanish speaking Sonya! Does your "Larry" translate too?

LOVE

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Sonya Sotinsky
Sonya Sotinsky
Feb 20, 2022
Replying to

I love you Ana. Thank u for being with me every step of the way.

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karen_clifton22
Feb 19, 2022

And yet another important value in our life is humor. You use it to help yourself and all of us deal with this crisis. You are really an extraordinary person and I wish I knew you better. When you heal, I would like to spend more time with you. Love you, Karen.

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Sonya Sotinsky
Sonya Sotinsky
Feb 20, 2022
Replying to

We’ll do it for sure!!! Love S

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kellyclif
kellyclif
Feb 18, 2022

Did you know alpacas spit to assert dominance? With your new hidden talent in future meetings you can cut the small talk and establish quickly who is the boss bae in the room. We love you. You’re going to heal up fast so they can radiate you ASAP and continue to heal. Sending you love from T Town.

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eeichelb
Feb 18, 2022
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Julia Lindberg
Julia Lindberg
Feb 18, 2022

Next time I see you, I’ll bring my umbrella!☔️ Keeping you all in my heart.

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