LIFE+TIMES

TWO MORE DAYS OF RADIATION!!!!!!!!!!!!!! Compared to many people i think i have weathered the 13 hours surgery and 33 radiation...

When Miguel and I left Berkeley, we joked that we were kicked out because we didn't drink coffee or wine and we didn't go to 'group'....

a review of small portable bluetooth speakers Bluetooth speakers are my new voice box! Currently I have settled into using my phone with...

Some of my early memories are of the smells of the health food store, coming home delighted to have 'candy' - honey and sesame seed...

This is a quick post to again say how very very important all the support from our family and friends has been. I think that before I was...

I am closing in on 2 months without a tongue. Not having a tongue REALLY makes you appreciate what you took for granted. I have touched...

This afternoon 3-12-22 vs August 2022 (ahhh...to have a neck...) Side view of war wounds 3-12-22. The swelling at this point is mainly...

Glossectomy Girl, or Glossy as her friends call her, just got fitted for her new superhero mask! While sitting on the flat stretcher of...

Two years ago our Normal lives were turned on end. We never could have imagined a day when donning a mask to go shopping would be Normal....

Like someone is slowly choking my neck 24/7. Tightness wraps my entire neck and it's numb to the touch. Rotating my head pulls on the...

San Francisco, one of the most liberal cities on earth, just lifted the indoor mask mandate. For those of us who are immuno-compromised...

I tried to find recipes for Peg formulas in vain. I even bought one online recipe book and was so disappointed when it had ingredients...

When you have a laryngectomy stoma (like a tracheostomy but when they have removed your larynx as well) water can be your enemy. Gone are...

Until several years ago i wasn't a dog person. Until Harlee i wasn't THAT kind of dog person. The annoying one who takes their dog...

Thursday night set me back on my heels. I was gaining confidence and feeling good about progress. Setbacks are to be expected, i get it,...

My new anatomy is proving to have certain hidden talents! Now that my mouth is less swollen and they took the tube out, i am working on...

A whiff of Trader Joes Pad Thai made me giddy! It hadn't occurred to me that smell would be another casualty of this cancer. But guess...

My face has evolved (3 weeks post surgery, 3x smaller) !!! Last night the girls realized that I no longer look like Ryan R - I have a new...

I have spent a good deal of my life, like most people, working to be successful. First at school and then many years and countless hours...

Siena and Ela tell me i'm wrong, but they are too nice. The wreckage left by this surgery is gross. I'm sharing the picture of my leg...